Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context

Action research within the DöBra research program

Document identifier: oai:DiVA.org:ltu-77297
Access full text here:10.1080/07481187.2019.1701145
Keyword: Medical and Health Sciences, Health Sciences, Nursing, Medicin och hälsovetenskap, Hälsovetenskaper, Omvårdnad
Publication year: 2020
Relevant Sustainable Development Goals (SDGs):
SDG 3 Good health and wellbeing
The SDG label(s) above have been assigned by OSDG.ai

Abstract:

Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DöBra card items. The DöBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.

Authors

Carol Tishelman

Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden. Center for Rural Medicine (GMC), Storuman, Sweden. Stockholm Health Care Services (SLSO), Stockholm country council (SLL), Stockholm, Sweden. School of H
Other publications >>

Malin Eneslätt

Luleå tekniska universitet; Omvårdnad; Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden
Other publications >>

Elizabeth Menkin

Institute for Palliative Medicine, San Diego Hospice, San Diego, California, USA
Other publications >>

Olav Lindqvist

Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden-Department of Nursing, Umeå University, Umeå, Sweden
Other publications >>

Record metadata

Click to view metadata